MUSIC Dataset
Overview
MUSIC (Mitochondrial DAMPs as mechanistic biomarkers of gut mucosal inflammation) is a longitudinal adult IBD cohort study with fixed follow-up timepoints focusing on mucosal healing outcomes and comprehensive disease activity assessment.
Study ID Prefix: MID-
Key Characteristics
- Data Structure: Fixed timepoints (timepoint_1 through timepoint_5)
- Participants: Adults only (≥18 years)
- Longitudinal Follow-up: Scheduled visits at baseline and follow-up intervals
- Focus Areas: Mucosal healing, PRO2 scores, treatment response
Dataset Statistics
- Approximate Rows: ~17,260 (all timepoints)
- Columns: 360
- Study Centers: Edinburgh, Glasgow, Dundee
- Study Groups: CD, UC
Key Variables
Demographics & Baseline
study_id: FormatMID-xxxredcap_event_name:timepoint_1throughtimepoint_5study_group: CD or UCage,sex,height,weight,bmidate_of_diagnosis,age_at_diagnosis
Disease Activity Scores
- Crohn's Disease:
hbi_total: Harvey-Bradshaw Index- Individual HBI components:
hbi_abdominal_pain,hbi_liquid_stools, etc. - Ulcerative Colitis:
sccai_total: Simple Clinical Colitis Activity Indexmayo_total: Mayo Score- Individual Mayo components:
mayo_stool_frequency,mayo_rectal_bleeding - Endoscopic Scores:
sescd: Simple Endoscopic Score for Crohn's Diseaseuceis: Ulcerative Colitis Endoscopic Index of Severitymayo_endoscopic_score: Mayo endoscopic subscorephysician_global_assessment: Remission, mild, moderate, severedisease_activity: Biochemical remission, remission, active, biochemically active
Mucosal Healing Outcomes
endoscopic_mucosal_healing: yes/no (SES-CD or UCEIS = 0)complete_mucosal_healing: yes/no/partial (endoscopic healing + normal pathology)endoscopic_mucosal_healing_at_3_6_months: Outcome at timepoint_2, populated to all timepointscomplete_mucosal_healing_at_3_6_months: Outcome at timepoint_2endoscopic_mucosal_healing_at_12_months: Outcome at timepoint_5complete_mucosal_healing_at_12_months: Outcome at timepoint_5
PRO2 Scores
cd_pro2_raw: HBI liquid stools + HBI abdominal pain (raw)cd_pro2_weighted: HBI liquid stools × 2 + HBI abdominal pain × 5 (weighted)uc_pro2: Mayo stool frequency + Mayo rectal bleedingibdresponse_criteria_cd_met: Boolean for CD PRO2 criteria (liquid stools ≥4 AND pain moderate/severe)ibdresponse_criteria_uc_met: Boolean for UC PRO2 criteria (stool frequency = 3 AND rectal bleeding >0)
Laboratory Values
- Blood parameters:
haemoglobin,crp,albumin,white_cell_count, etc. calprotectin: Faecal calprotectincalprotectin_date: Sample collection date- Drug levels:
ifx_level,ada_level,ifx_antibody,ada_antibody drug_level_date: Date of drug level testing
Medications
sampling_*: Medications at time of visit (1 = yes, 0 = no)sampling_asa,sampling_aza,sampling_mp,sampling_ifx,sampling_adasampling_vedo,sampling_uste,sampling_tofa,sampling_mtxsampling_steroids,sampling_abx,sampling_ppi- Baseline medication history:
baseline_asa,baseline_ifx,baseline_ada, etc.
Clinical Events
new_flare_up: New flare since last visitflare_up_1_date,flare_up_1_description: Flare detailsunplanned_hospital_admission: Hospital admission since last visithospital_admission_1_*: Admission detailsnew_oral_steroids_since_last_visit: New steroid use
Phenotyping
- Montreal Classification:
montreal_cd_location,montreal_cd_behaviour,montreal_uc_extent,montreal_uc_severity - Extra-intestinal manifestations:
baseline_eims_* - Surgical history:
surgical_history_1_*,surgical_history_2_*, etc.
Investigations
endoscopy_date,endoscopy_type_colonoscopy,endoscopy_type_flexible_sigmoidoscopyendoscopy_report,pathology_reportradiology_test_date: CT/MRI datesmri_small_bowel,mri_pelvis,ct_abdomen_pelvis: Imaging performed- Radiology reports available
Patient-Reported Outcomes
cucq_total: CUCQ-32 total scorecucq_1throughcucq_32: Individual questionnaire itemsproms_comments: Patient-reported outcome comments
Saliva Sampling
saliva_sample: Sample collected (1 = yes, 0 = no)saliva_setting: Sample collection settingsample_date: Date of saliva sample- Saliva-specific variables:
saliva_eim,saliva_abx,saliva_piercing, etc.
Data Structure Notes
Timepoint Structure
timepoint_1: Baseline visittimepoint_2: ~3-6 months follow-uptimepoint_3: ~6-9 months follow-uptimepoint_4: ~9-12 months follow-uptimepoint_5: ~12 months follow-up
Demographics DataFrame
A separate music_demographics_dataframe asset contains only timepoint_1 data with selected columns for baseline analyses.
Mucosal Healing Forward-Filling
Mucosal healing outcomes at later timepoints (3-6 months, 12 months) are forward-filled to baseline for convenience in analyses.
Study-Specific Features
- Mucosal Healing Focus: Comprehensive tracking of endoscopic and complete mucosal healing
- PRO2 Scores: Both raw and weighted PRO2 scores for CD and UC
- Fixed Timepoints: Consistent follow-up intervals enable temporal analyses
- Comprehensive Phenotyping: Detailed baseline characteristics and longitudinal tracking
Important Considerations
Disease Activity Variables
MUSIC has two disease activity variables:
- physician_global_assessment: Clinical assessment (remission, mild, moderate, severe)
- disease_activity: Broader classification including biochemical status
See Known Issues for comparison with other studies.
Timepoint Completeness
Not all participants have data at all timepoints. Check redcap_event_name when analyzing longitudinal trends.
Saliva Sample Data
Saliva sampling data is merged from separate REDCap instruments. Some timepoints may not have saliva data.
Data Dictionary
- Unified Variables: Common variables across all datasets
- MUSIC Columns: Complete column list with construction notes
Pipeline Documentation
- MUSIC Pipeline: Data extraction and transformation code
Data Access
For access requests or data questions, contact the data stewards listed in Dataset Governance.